Thursday, October 30, 2014

Another hospital day...

I know I am actually thankful that we are so close to Huntsmen Cancer Institute. Ty and I have talked how blessed we feel to be so close. Many patients drive from other states to come to this amazing hospital for treatment. I am thankful for doctors who are helping us in this journey. I am especially thankful for Dr. Jon Sweetenham. He is the sweetest man and his gentle nature has been comforting and compassionate to Ty and I. The nurses are the same way. I am thankful to have the opportunity to go today to see our "next step." Right now, we are looking into doing a DONOR LYMPHOCYTE transfusion. We are going to the hospital today to discuss this happening. If you are wondering it is this:


What is donor leukocyte infusion?

Donor leukocyte infusion is the infusion of your donor's lymphocytes (white blood cells), obtained from blood donated by your original bone marrow donor. These donated white blood cells contain cells of the immune system that can recognize and destroy cancer cells.
The goal of this therapy is to induce a remission of your cancer by a process called the graft-versus-tumor effect (GVT). The donor T-cells can attack and control the growth of residual cancer cells providing the GVT effect. It is hoped that the donor leukocyte infusion will cause GVT and lead to a remission of your cancer. 
Your donor will be contacted to begin the collection process, which can be like the original bone marrow donation process. After these cells are collected, they will be infused. 
You might require standard chemotherapy to reduce the amount of cancer you have prior to your donor lymphocyte infusion. Following your donor lymphocyte infusion, you will be continually monitored.
This is what the doctors are looking at right now, since no more chemo or another transplant can be done. Do you know of anyone who has done this? I had never heard of it until last week. 

I am very grateful for my husband. He is just my sweetheart and I love him so much. His pain is back right now in his back and hip and he is stubborn. He does not like to take pain medication. Thankfully, this morning we are seeing his doctors. I am sure they can direct and  guide us on knowing what course we should take. I have to say that it's so hard to see the person that you love more than anything in pain. He never complains. He is trying to be strong. I got up around 4 am and tried to massage the pain. I know it didn't take the pain away, but I think the power of touch and being together is important. I cried knowing I can't take away his pain. I am sure he will eventually want relief and take something. I won't give up hope for Ty. We want more time together and we are doing everything we can. Just know that many of you may not know that Ty has tried much more than chemo and the transplant. Ty did the holistic journey when he first found out he had cancer. It came to a point, he had to do chemo or he would have been died. His entire body was in pain and his lymph nodes were massive in size. They kept growing and we knew dealing with an aggressive blood cancer was going to be a challenge. 

We don't know what the future hold. Who does? We can only be THANKFUL for the day. As many of you know, I have two teenage boys who are reminding me that LIFE has to go on. I have to be there for them and make our home "as normal" as "normal" can be in a horrible situation. The boys have great strength. Just this morning, before school, Zach and I shared how fortunate we are to have such a family that LOVES each other so much. We call ourself... a team. We are united like a TEAM to be a forever family. Zach and Ty have grown so close. They have each other and they lean on their sisters a lot right now. They have special conversations with each other. I know that they are scared, worried, sad, and yet they are very optimistic in knowing and believing that "it's all going to be okay." Our faith is strong and we believe that life does not end here on earth. We know that when we die (which all of us will do eventually), we are going to be together forever and our love does not end here on earth. We feel God in our home. We want to be together forever. This is what get's us through the sadness and allows us to still smile and be GRATEFUL. There are lots of laughter, happiness and (sitting with Ty) watching lots of Family Feud, the World Series, the Voice and my favorite- Shark Tank at our home. Precious moments and we are still making memories.


When I think of Tyler and I. I think simply of this word. blessed.
We found each other many years ago and we committed to love each other forever. We faced and conquered our trials. We fought hard to raise beautiful, kind, loved... children with integrity and values. We know the RICHES of life are not material-
they are the relationships we have and LOVE, FAMILY & FRIENDS.


It takes COURAGE to be different, to share your life with others. It takes COURAGE to stand up for what you believe in. It takes
COURAGE to battle for your life. I think my husband is has taught me COURAGE and to DREAM BIGGER.

I would give anything for him to come to CHA with me in 2015.

 It is because of his BIG love and belief in me that I am speaking at CHA. It is because of him and our children that I dreamed BIGGER. It is because of YOU who support me that I am doing what I love. I hope all retailers, online stores, distributors, designers and friends will join me at CHA to speak. 




I will be speaking before CHA starts on Friday January 9th at the Anaheim Convention center from 10:30am-11:30 am. As a CHA member, you can attend for free. If you are not a CHA member you can still come and it is $15.00 plus the registration fees. I know that they have added a blogger inclusion this year to include bloggers at the tradeshow. I would invite and love for you to join me if you are going. I am very fortunate that all of my children will all be attending to support their mother. To them, I am just mom.  

This is what CHA is for all of you wondering... What is she talking about? 
Join more than 3,000 buyers and 400 exhibitors from 55 plus countries 

as they come together for 5 days of education, networking and trade. 

You cannot miss it!
The Craft & Hobby Association (CHA) 2015 Conference & Trade Show (CHA MEGA Show) is the largest craft trade marketplace in the world and takes place January 9-13, 2015 in Anaheim, California at the Anaheim Convention Center. 
  • Conduct business in the marketplace; it’s an order writing Show.
  • Make in-person connections to grow your business; getting face time with new customers, colleagues and friends!
  • Map out your 2015 plan to boost business profits in 5 days.
  • Learn from experts and business partners who will educate and inspire you.

I needed to share a photo of McKay and Seth from their missions recently-


BEAUTIFUL TEMPE Arizona.... Seth is loving his mission. Ty and I are so proud of him. He is just a great son. I am thankful he is better and back on his mission. I know that him coming home was a blessing for not only him, but his dad. Did you know that Seth and McKay are 7 days apart?

People thought I had twins, because they were two years old when Ty and I got married. I just let everyone think this. It was a "long" story to explain, there was no way I gave birth to both of them. ha! I'm so thankful these two are together serving a mission and thinking of others. They will get home and both plan to finish the college that they started. 



McKay is loving rain... and loves Seattle. She is currently right near Bellevue serving her mission. I have a feeling she doesn't to want to come home. This is my baby girl. How is this possible that she is 20?????

Trust me young parents- the time FLIES. Enjoy it!!!!!! The little things don't matter. Kids are sent to us to learn, grow, and develop. They will make mistakes but so do we (parents). I always knew that my children were actually given to me from God. I was dealing with royalty. So are you!!!!
xoxo




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14 comments:

Theresa Smith said...

Dear Teresa,

I'm thinking of you & your family and sharing your hope. Your faith is obviously very strong and it will carry you through this trying time.

Veronica said...

Keeping all of you in my prayers. It would be great to see Ty at CHA too. I remember the last time he was there with you helping with the make n' take, a spiral bound book, and some ladies kept coming back over and over--I think to see Ty. lol.

Philippa said...

Teresa sweetheart, I hope all goes as well as it possibly can at the hospital and that this new treatment is an option for Ty. You are all in my thoughts every second of every day and I know I've said this before but I'll say it again.. I LOVE YOUR POSITIVE WAY OF LOOKING AT THINGS EVEN WHEN THE SITUATION IS HEARTBREAKING. You are SUCH an inspiration and so many people could learn so much from you honey in terms of how to be grateful for each and every day with the ones we love. Much love and hugs winging their way to you, Ty and your wonderful family xxx

Mimos de algodón said...

Hello Teresa, I wish the best for you and your awesome family. I know you are strong enough. Best regards and a big Hugs. Carmen

Kathy Jo said...

Praying for you and Ty and your family. With God at the lead and the team that you have - you all can do ANYTHING! Blessings of peace and strength and hope. Hugs - Kathy Jo

faithnprayer said...

Yes Teresa a man at the church I attended had this done at KU Hospital with FANTASTIC results. God is so good. I am trying to locate his family. His wife and I served on committees together but then have moved to another church and I moved out of the area.I will say this...This was done about 5 years ago and he is doing so well. This was the last resort. He had lost so much weight and was very weak...This brought him back over time to the portly man he had been. I have been lifting your family in prayer since the beginning of this journey and asked for prayer on my blog...Please know that you are being prayed for by so many....May the Lord continue to bless you abundantly.....Please email if you have any questions....Oh and by the way this gentleman was in his 50's....

Melinda Baggenstos said...

Hello Teresa~ It was so wonderful to chat with you a few Fridays ago after your class at the Monroe Ben Franklin. This past year has been so difficult on so many levels and everything that you said at the end of class was exactly what I needed to hear. Both on a professional and personal level.
Two years ago, my daughter had full spinal fusion surgery on her 12th birthday and she now has 2 rods, 20 screws and two plates permenantly in her back. One year later, she had to have a malignant melanoma removed from her hip and a few weeks ago she received a diagnosis of having a Chiari Malformation so we are meeting with a neurosurgeon at the end of the month. Last year both my mother and father-in-law received their AML Leukemia diagnosis and last month I found out that the store where I work, teach and have found such a supportive community at is closing.
That Friday I was 95% sure I was going to miss your class. I was emotionally and physically done and just wanted to be left alone but my friend Teri was so excited to go. I said a prayer in the car that I would make it through the evening without randomly busting out in tears in front of strangers and I almost made it. Until I heard your inspirational words of encouragement and empowerment right before class finished. You said exactly what I needed to hear. I want you to know you made a difference in my life that night.
We are not meant to go through this life alone and I sincerely believe that many times it is through others that our Heavenly Father answers our prayers. You and your family continue to be in mine.
Your beautiful daughter McKay is serving our ward right now. I want you to know that I have witnessed first hand the difference that she and her companion are making in the lives of the people that they are teaching.

Vanessa McKelvey-Smith said...

Lovely seeing Seth and McKay and to know they're doing well on their missions. Good to know that you and Ty are keeping the faith and exploring all available options. I know it is hard but I also know that you can make it through. Keep touching and massaging and talking.....sometimes the human touch along with your faith can make all the difference! Love and hugs to you and your family.

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